My youngest daughter was diagnosed with severe dyslexia at
the end of Year 1.
Getting the diagnosis wasn’t a big shock, we had suspected she had an issue from the time she was at Kindy; Pre-Primary was a mess of a year, and by the start of Year 1 we had begun the long testing process. We also watched her daily struggle, so putting a name to it came as a relief in some ways.
Having a diagnosis has undeniably helped. It allows her to
label some of her challenges, to put them in a box and say to herself – and others
– ‘that’s my dyslexia, that’s not me’.
From the very start she has owned her dyslexia. We haven’t
tried to hide it, and I have encouraged her to talk about it with her
classmates and friends. She stands up and talks about it as a news topic, her teacher referenced it on her Merit Certificate - and I
strongly believe this has helped stem any possible teasing and bullying.
My daughter is now only weeks away from the end of Year 2.
Yet her ability to read, write, spell and understand certain maths concepts is
probably that of a Pre-Primary student. She’s a smart kid though. Dyslexia is
not related to intelligence, and most dyslexic kids test to be above average
intelligence.
All dyslexics experience different strengths and challenges,
and like many things, it operates on a continuum. This is how dyslexia affects
my daughter:
Poor sense of word recall – she often struggles to find the
word she wants to use to describe or explain something. As a result she will
use an incorrect word or simply make one up, which can be kind of cute.
Difficulty hearing sounds – she has difficultly hearing or
distinguishing between certain sounds. This has a knock on effect for both
speech and spelling.
Poor concept of time – she has difficulty understanding the
abstract notion of time and cannot grasp the difference between waiting for an
hour and waiting for a year. The language of time, is therefore lost on her and
she will talk about things happening yesterday when in fact she means tomorrow.
Poor speech – as she unable to hear certain sounds, she
cannot replicate them, leading to difficulties with her speech.
Poor spelling – if you cannot hear or say sounds, then it
makes sense that you won’t be able to use them when you are writing. When
writing she often leaves out vowels and misses adjacent consonants.
Poor letter recognition and formation – she struggles to
distinguish between similar looking letters such as b and d, n and h or similar
sounding letter such as g and j. She has difficulty visualising diagonals and
so letters such as K, M, W and V are either written incorrectly or she prefers
to read and write them when they are in a curly text.
Confusion with left and right – if left unguided, she will
often start reading a word from the right-hand side, for example she will read ‘got’
as ‘tog’.
Poor short-term working memory – if she correctly sounds out
a new word on one page, she won’t necessarily remember it when she reads it on the
next page. It will look like a new word and she will need to sound it out
again. She may read the same word, three different ways over the course of a
few minutes, for example ‘got’ as tog, get and got.
Slow processing - related to the working memory is the fact she processes information more slowly. It takes her longer to work through instructions, so if you give her a four step process, by the time you have finished telling her the last step, she's only just processed the second, and probably forgotten the first. She can do everything you ask, but not if you dump all the information on her at once. This is usually when people accuse her of 'not listening', but she is listening... she's probably listening very carefully - but she's just trying to recall the information that is rapidly slipping away.
Poor number recognition – while she is able to visually
understand numbers and put them in the correct order, she cannot name them. Often
she cannot tell you what a number is (for example ‘twelve’) without counting
from 1 (ie 1-2-3-4-5-6-7-8-9-10-11-twelve).
There are compensations though.
From early on, before we realised she was struggling to comprehend
the world around her, she had already begun to discover methods of coping. She would
use her body in a way to describe words she couldn’t find the language for, and
as a result, she has always been physical and animated. When she couldn’t find
the word for banana, she would curve her hands into the shape of the fruit, or
pretend to peel and eat it. Automatically we would provide the word ‘banana’
which she would repeat, and all the while we had no clue that she was having
difficulty recalling the word begin with.
She is able to spot differences and see patterns that ordinary
brains cannot. She has walked into a room where one small thing has changed and
notice it immediately. She completed a nine square sudoku style puzzle in
seconds, where instead of numbers, images of different types of weather had
been used.
She always kicks my butt at Memory, and I've never once needed to 'let' her win. I wish she'd let me win once in a while.
She has uncanny long term memory, often dredging up a comment I made once, five years ago, or tearing up at the memory of a random event that happened when she was three. She will remember the faces of people she met once, or the precise location of her great-grandmothers grave, but she has no idea what her uncles' names are.
She has an incredible eye for detail - once with her speech therapist, we were playing a game where we each had a different game board. Each board had 100 images. A card with six images was dealt – but only one of
those six images was present on each of the boards, so you had to look at a
board with 100 items, while searching for six different images, only one of
which was actually there (a bit like Where’s Wally). It meant you could spend
most of your time looking for an image that wasn’t even there. Almost every
time she would win, and then find the correct image on the other boards as well
just to prove a point.
I believe she also has a level of insight towards others that
comes directly from her own personal anxiety and sadness. She recognises these
feelings in others, because she has experienced it herself, and as a result she
can be very empathetic.
She is also very visual and creative, she loves drawing with fine levels of detail as a result of her intense observation.
She also has plenty of big ideas and makes connections between topics and concepts that would normally be beyond a seven year old. Truth be told, sometimes her statements are wildly left field and beyond the mortal brain of her mother (me), but I love her enthusiasm regardless.
I have been telling her stories about the many inspiring and
successful people who have dyslexia and have achieved incredible things in
their lives. She loves finding out that an actor she loves on TV or an author
who wrote a book she enjoys also has dyslexia. She knows that although she will
be challenged by her learning disorder, she won’t be limited by it – and tells
me constantly that she can’t wait to see what amazing things she will do in her
life.
I freely admit that before my own daughter was diagnosed, I
hardly knew a thing about dyslexia. But chances are there will be one, two or even
three children in every classroom in the country with it, diagnosed or not, so
I think it’s important for all parents and teachers to know what it is.
Without a diagnosis, you might just think they are slow to
learn, perhaps they are seen as the ‘naughty kids’ because they don’t concentrate
in class or they’re disruptive. My daughter certainly was. You might see them
as masters of procrastination, as they will do almost anything to avoid certain
situations.
As she gets older, some aspects of her dyslexia will get
better as she learns how to manage it, and others will get harder. I have no
doubt that this is a lifetime journey that she’s on, and for the next decade at
least, I will be right there alongside her.
To be continued...
